A Nordic link collection and contact service for rare diseases

Choose from alphabeth

The pasient organisations

How to establish contact...

...with patient organisations for rare diseases in the Nordic countries?

On the diagnosis page, you can find out whether there exists a relevant patient organisation in Norway, Sweden, Finland, Iceland and/or Denmark, which you may contact.

Perhaps it might be useful to contact a patient organisation in one of the other nordic countries, if there is none in your own. Alternatively, you can get in touch with the Danish network for patients without an organisation. In Norway you can contact "The service line for rare disorders" tlf. 800 41 710.

Go to the top of this page and search via the alphabet to find out which contact options exist for the diagnosis you are interested in.

The danish contact system

How to get in touch with others

Go to the top of this page and search via the alphabet to find out which contact options exist for the diagnosis you are interested in.

Supported by The Nordic Counsel of Ministers Nordic Counsel of Ministers